What NHS leaflet doesn’t tell you

York Press: What NHS leaflet doesn’t tell you What NHS leaflet doesn’t tell you

HOUSEHOLDS in York, and all over England, are receiving a colourful NHS leaflet entitled “Better information means better care”.

This leaflet announces a plan to improve NHS care by collecting information on individual patients from GPs, hospitals etc, to assess and compare the effectiveness of NHS services in different places.

The leaflet says this information may go to “approved researchers and organisations outside the NHS”, but details that could identify individuals will be removed before information is “shared”.

What the leaflet does not say is that this information about us may be sold to drug companies, insurance companies, private health care companies and private hospitals.

It doesn’t say, what an NHS spokesman admitted to a newspaper reporter, that there is “a small risk” companies already holding data on individuals could match it with new NHS information and re-identify those individuals.

The leaflet says you can prevent information about you being shared by asking your GP to make a note on your medical records.

We hope this choice can be more widely publicised, and patients given the opportunity to consult GPs in order to make an informed decision.

Haleh Afshar, Main Street, Heslington.

John Heawood, Eastward Avenue, Fulford.

Priscilla Roxburgh, Fairfax Street, York.

Comments (8)

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12:33pm Mon 3 Feb 14

bolero says...

Yes, delivered like junk mail, so I wonder how many people didn't bother reading it at all. There are too many instances these days where the individual is required to opt out of various surveys, schemes, etc; rather than having to opt in. What the ultimate aim of this latest idea is, is difficult to understand. I would have thought that the NHS would or should have all the information that is required in order to deal effectively with the medical needs of the individual. I too fear that the information will be available at a price to any organisation who is prepared to pay for it for the furtherance of their own business/company, whatever that may be. I for one will be opting out.
Yes, delivered like junk mail, so I wonder how many people didn't bother reading it at all. There are too many instances these days where the individual is required to opt out of various surveys, schemes, etc; rather than having to opt in. What the ultimate aim of this latest idea is, is difficult to understand. I would have thought that the NHS would or should have all the information that is required in order to deal effectively with the medical needs of the individual. I too fear that the information will be available at a price to any organisation who is prepared to pay for it for the furtherance of their own business/company, whatever that may be. I for one will be opting out. bolero
  • Score: 15

1:16pm Mon 3 Feb 14

Just zis guy, you know? says...

www.care-data.info - everything you need to know about this heinous scheme, as well as how to opt out; you do *not* need to make an appointment with your GP, just print out the form letter (also available on the above site) and hand it in to your surgery. Don't forget to to include any family members (children etc.) as well.
www.care-data.info - everything you need to know about this heinous scheme, as well as how to opt out; you do *not* need to make an appointment with your GP, just print out the form letter (also available on the above site) and hand it in to your surgery. Don't forget to to include any family members (children etc.) as well. Just zis guy, you know?
  • Score: 7

1:28pm Mon 3 Feb 14

Zetkin says...

Unsure whether I've not received one at all, or simply chucked it in the recycling with the half-ton on pizza & kebab leaflets I've received since new year.

Either way, I'm grateful to the letter writers and other contributors for highlighting this.
Unsure whether I've not received one at all, or simply chucked it in the recycling with the half-ton on pizza & kebab leaflets I've received since new year. Either way, I'm grateful to the letter writers and other contributors for highlighting this. Zetkin
  • Score: 13

2:20pm Mon 3 Feb 14

Just zis guy, you know? says...

Zetkin wrote:
Unsure whether I've not received one at all, or simply chucked it in the recycling with the half-ton on pizza & kebab leaflets I've received since new year.

Either way, I'm grateful to the letter writers and other contributors for highlighting this.
If I was feeling cynical then I'd say that that's *exactly* what they want people to do - don't believe the hype about data being anonymised or 'pseodynmised' either; if the data was truly anonymised then there'd be no need to opt out as there'd be no way to link any given dataset with a given patient.

Did I mention that the whole 'scheme' is being handled by ATOS?
It is.

care.data is nothing to do with sharing data between GPs and hospitals; this has been going on for a while now and is, IMO, an essential part of the care process - it's all about selling your data to the highest bidder, and those bidders do not necessarily need to operate within the medical industry, either.

It's also worth pointing out that the care-data.info site was collated by a GP - the very fact that doctors have deep misgivings about the whole thing is a big red flag, at least to me.
[quote][p][bold]Zetkin[/bold] wrote: Unsure whether I've not received one at all, or simply chucked it in the recycling with the half-ton on pizza & kebab leaflets I've received since new year. Either way, I'm grateful to the letter writers and other contributors for highlighting this.[/p][/quote]If I was feeling cynical then I'd say that that's *exactly* what they want people to do - don't believe the hype about data being anonymised or 'pseodynmised' either; if the data was truly anonymised then there'd be no need to opt out as there'd be no way to link any given dataset with a given patient. Did I mention that the whole 'scheme' is being handled by ATOS? It is. care.data is nothing to do with sharing data between GPs and hospitals; this has been going on for a while now and is, IMO, an essential part of the care process - it's all about selling your data to the highest bidder, and those bidders do not necessarily need to operate within the medical industry, either. It's also worth pointing out that the care-data.info site was collated by a GP - the very fact that doctors have deep misgivings about the whole thing is a big red flag, at least to me. Just zis guy, you know?
  • Score: 8

3:50pm Mon 3 Feb 14

bolero says...

Just zis guy, you know? wrote:
www.care-data.info - everything you need to know about this heinous scheme, as well as how to opt out; you do *not* need to make an appointment with your GP, just print out the form letter (also available on the above site) and hand it in to your surgery. Don't forget to to include any family members (children etc.) as well.
Thanks for this information. Well worth reading the linked articles too. This needs to be publicised as much and as widely as possible. This has nothing whatsoever to do with your medical care and who knows where the information will eventually end up. Most likely with Tesco and every other supermarket in the land so that we will be receiving even more junk mail telling us what they sell which is good for our health and well being. Whilst the form mentioned could be helpful I don't think it is absolutely necessary to submit this to your practice but to simply inform them by word of mouth that you wish to opt out of this scam.
[quote][p][bold]Just zis guy, you know?[/bold] wrote: www.care-data.info - everything you need to know about this heinous scheme, as well as how to opt out; you do *not* need to make an appointment with your GP, just print out the form letter (also available on the above site) and hand it in to your surgery. Don't forget to to include any family members (children etc.) as well.[/p][/quote]Thanks for this information. Well worth reading the linked articles too. This needs to be publicised as much and as widely as possible. This has nothing whatsoever to do with your medical care and who knows where the information will eventually end up. Most likely with Tesco and every other supermarket in the land so that we will be receiving even more junk mail telling us what they sell which is good for our health and well being. Whilst the form mentioned could be helpful I don't think it is absolutely necessary to submit this to your practice but to simply inform them by word of mouth that you wish to opt out of this scam. bolero
  • Score: 3

8:19pm Mon 3 Feb 14

Pinza-C55 says...

It's all part of softening you up for the privatisation of the NHS.
It's all part of softening you up for the privatisation of the NHS. Pinza-C55
  • Score: 4

8:44pm Mon 3 Feb 14

MouseHouse says...

filled in and returned to the surgery. Copies printed out and passed around friends and neighbours.

Stop the NHS being privatised.
filled in and returned to the surgery. Copies printed out and passed around friends and neighbours. Stop the NHS being privatised. MouseHouse
  • Score: 5

12:08am Tue 4 Feb 14

ColdAsChristmas says...

Now why would the NHS want to sell off one's private medical notes to insurance companies? Money of course. Expect holidat insurance and life insurance premiums to rise. Don't even think of Private medical insurance if you are slightly sick, there is no proffit in that.
Now why would the NHS want to sell off one's private medical notes to insurance companies? Money of course. Expect holidat insurance and life insurance premiums to rise. Don't even think of Private medical insurance if you are slightly sick, there is no proffit in that. ColdAsChristmas
  • Score: 2

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