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East Yorkshire Lyme Disease sufferer Kevin Slater hoping to raise awareness


A FATHER-OF-TWO from East Yorkshire has told how he is still suffering a range of horrendous symptoms from Lyme Disease – 12 months after being bitten by a tick while walking in the Lake District.

Kevin Slater, 49, has spoken out in a bid to increase awareness of the illness, both amongst the general public and medical professionals in the UK.

“The effects of this disease are so horrendous that I made a promise to raise as much awareness as possible to try to prevent other people, especially children, from becoming infected,” he said, claiming there was a severe lack of knowledge and understanding within the NHS of the disease and appropriate methods of treatment.

“It is crucially important that early treatment with aggressive antibiotics is given to stop the spread and eradicate the bacteria in the early stages.

“There should be public warnings about Lyme Disease in parks and open spaces so that people can take measures to protect themselves.

“We often see public notices in doctors surgeries warning about the dangers of disease such as malaria should we travel abroad. However, there is nothing mentioned about Lyme Disease, which exists in our own country.”

The Press reported last autumn how Mr Slater, a self-employed engineering consultant from near Pocklington, was bitten by a tick, an arachnid that cuts through flesh with barbed teeth before inserting a needle-like feeding tube, when he was walking in Grisedale Valley, Patterdale, during last August, probably while he was walking through a patch of bracken.

His illness developed into encephalitis -inflammation of the brain that can cause brain damage, blindness and even death.

He said today that over the past year, his symptoms had included fatigue, low grade fevers, swollen glands, stiff neck, myalgia, chest and abdominal pain, sleep disturbance, poor concentration, depression, back pain, blurred vision, tinnitus, headaches and dizziness.


How to avoid getting Lyme Disease

KEVIN Slater advised people to avoid being bitten by ticks by:

• Keeping to paths and avoiding walking in long grass or overhanging areas of fern

• Wearing long trousers and tuck trousers into socks, and long sleeve shirts

• Checking for ticks during and after walks in areas which may possibly be inhabited by ticks

• Shaking clothing outdoors when returning home

• Removing tick with tick remover or tweezers if bitten, ensuring mouthparts are not left in skin

For more information, visit www.bada-uk.org/ or www.lymediseaseaction.org.uk/

Comments(13)

Digeorge says...
9:34am Fri 13 Aug 10

Sorry to hear the story about the Lyme Disease.

Of course, according to a local GP lyme disease is not prevelent in York/North Yorkshire and teh North Yorkshire Moors.

However, I would like to correct him that if he looks on the lyme disease website that he will notice that lyme disease is, in fact, prevalent in certain areas in York namely Strensall common, The Knavesmire, York.

Please be careful of walking the dogs in skirts and shorts because ticks are common. The disease is more common in those people with low immune systems.

Thanks to the GP who actually tested me for lyme disease and also for the continuing care for lupus and other major medical problems which of course according to one GP, I could not possibly have :)

I hope that you now have the right treatment and that progress is being made.

Joanne60 says...
11:40am Fri 13 Aug 10

Lyme Disease can be a dreadfull illness made so much worse by the lack of awareness by our doctors.

It took 5 doctors and 3 Rheumatologists 4 years to diagnose me.

As my symptoms deteriorated I was diagnosed with Fibromyalgia, ME/CFS, Arthritis, Muscle Weakness, Musculo Skeletal Disease, Poly myalgia Rheumatica and finally a chance course of antibiotics improved my symptoms and led my doctor to suspect Lyme Disease. I had attended surgery at times of bites, bulls eye rashes, summer flu' and migrating arthralgias all documented on their computer but although red flags for Lyme Disease missed by my doctors.

After long term antibiotics following ILADS guidelines mentioned in NHS Map of Medicine I have recovered I have my health and my life back.

At my worst I had trouble standing and walking across a room and was not able to walk up or down stairs for 3 1/2 years. I was retired early from the Civil Service on Ill health grounds, now I can cycle and garden again.

All that pain and disability and all those wasted years which could have been avoided with more awareness and apropriate medical attention at the time of the bite if only I and my doctors had been aware.

I am now in touch with 23 patients in my locality Guildford all struggling with Chronic Lyme Disease, the latest case like me diagnosed years ago with PMR and then last Christmas Parkinson's has found in fact it is lyme Disease and on antibiotics his symptoms are improving.

The most tragic thing in all this is that the children are the most vuilnerable and the hardest to get appropriate treatment for.

It is time the National papers got involved and realised the controversy over Lyme Disease is causing so many patients to suffer un necessarily.

Mrs S J Woods says...
11:52am Fri 13 Aug 10

Although I had heard of Lyme Disease it is not something I had a great deal of knowledge about.

I am now reading up on it as my family and I spend a lot of time outdoors all year round, I had no idea of the horrid consequences of this disease and will be much more careful when we are out and about.

Thank you Mr Slater for raising awareness of this and I hope that you go on to make a full recovery.

Illegal Interrupt says...
12:25pm Fri 13 Aug 10

My daughter, now 14, is one of the lucky ones. She was bitten by an infected tick when she was just 2 years old. I removed the tick but was also aware of one of the early symptoms that is seen in some (but not all cases). Erythema migrans is a rash that is distinctive enough to provide diagnosis. My daughter developed the rash 10 days after the tick bite and consequently took a course of fairly strong antibiotics. She has had no further problems.
She got this tick in our own back garden in the North York Moors!

dailyjogger says...
1:23pm Fri 13 Aug 10

Thanks to Mr Slater for highlighting this important subject. I was unfortunate enough to become infected and if it wasn't for support from BADA UK (as per link at the end of the article) I would never have been diagnosed. My GP knew nothing about Lyme disease and would not have considered it without the information I gave him supplied by BADA UK.

Many doctors are still totally ignorant about this disease, dispite warnings from the Health protection Agency for people to be aware of ticks. The North Yorkshire Moors is highlighted by the Health Protection Agency as a 'hot spot' for Lyme disease. It's shocking that doctors in these highlighted areas are so ignorant.

While there are areas better known for Lyme disease cases, the Health Protection Agency also warn that any area where ticks are present poses a risk area for Lyme disease.

Digeorge says...
1:51pm Fri 13 Aug 10

Some doctors are incompetent at

- taking a careful note of the patient's history

- doing the appropriate blood tests

and once diagnosed are incapable of doing the relevant sensitivities to antibiotics and giving the correct amount of antibiotics. They are so casual it is unbelievable.

The One Click Group highlights some of these areas in great detail including doctor cover-up.

Joanne60 says that 5 doctors and 3 rheumatologists didn't diagnose her, I am not surprised!!!!

Illegal interrupt - the long-term problems of lyme disease can take a long time to develop. Your daughter should have a lyme disease test to rule it out or in as the case may be.


Lyme Disease does happen in North Yorkshire and many of the M.E/C.F.S patients have underlying bacterial infections which should have been treated ages ago.

Lyme disease is one of those differing diagnoses including that with patients who have CNS problems of lupus.

I used to live in the North Yorkshire Moors and know that my parents' dogs used to regularly have ticks on them after shooting.

West Nile Virus by mosquitos is also quite common and gives similar horrible illnesses.

Garrowby Turnoff says...
4:43pm Fri 13 Aug 10

Since pig and hen flu I've had nothing to worry about. Until today.

uist says...
5:01pm Fri 13 Aug 10

I was finally diagnosed with Lyme by a Lyme literate medical doctor 2 years ago, when I was 55, after having been ill for over 45 years. Trying to get to the bottom of my ongoing health problems I'd seen numerous NHS doctors over the years. GPs referred me to infectious diseases specialists, ENT specialists, physiotherapists, endocrinologists, gynae specialists and respiratory specialists, but I was routinely treated as if I was a hypochondriac. I was eventually diagnosed with chronic fatigue syndrome in 2007. By then I was so exhausted I could barely stand, my balance was terrible, my nervous system seemed to be constantly on red alert, my hand and foot muscles twitched, my eyes were very sensitive to light and small sounds made me jump, I was suffering from dreadful tinnitus, I couldn't sleep, I had awful migraine and vomiting attacks that lasted for days, my ability to concentrate had disappeared, my memory no longer seemed to function and I'd become dyslexic. It was only after discovering the Lyme Disease Action and BADA-UK websites that I finally began to make sense of all my symptoms and I went to see a private Lyme literate doctor. I turned out to have 3 different strains of Lyme infection plus 2 other infections that ticks often carry. Although the illness forced me to give up my job and lose my income the NHS has declined to cover the cost of my medical bills, even though, at last, I'm finally beginning to get better.

Digeorge says...
5:33pm Fri 13 Aug 10

I do so hope that Kevin has had the RIGHT treatment for the RIGHT bug for the appropriate length of time (i.e. considerable).

Some doctors locally seem to be unable to grasp this concept and think that it is this or that or the other bug which leads to inappropriate treatment.

Then as vist stated 'as a hypochondriac' or what was it = factitious illness. I guess the label never really does go away as does M.E/CFS sufferers.

But with the right treatment for the right bug and sensitivities, I hope Kevin you improve.

Vis stated that she had three different types of lyme, I would be interested to know what bugs because my friend in London has similar findings including cat scratch disease.

All of us have been 'munched' in our local hospitals.

Horses too have been known to be hosts. It is a serious disease and woefully under-diagnosed. The patient, of course, can never be right and never have anything rare in the NHS....

I am 'too medical' for some of my old GPs actually rather that I have a brain and think. This patient has always been right :)

RoseD says...
1:31pm Sat 14 Aug 10

Hi Kevin, hang in there. Maintain your sense of humour and your willingness to self-advocate. I have had Lyme and other tick-borne diseases for perhaps 30 yrs, with the worst of it starting in 1999. I arrived in York (from America) in 2005 and shortly after arriving realised my daughter likely had Lyme. Our then-GP stated flatly, "We don't have Lyme here!" and refused to treat. She had babesia, anemia, low hemoglobin, etc. Meanwhile mine returned with a vengeance. It took me til just the past year for my present Surgery to deign to treat.
Interestingly enough, the City of York was the site of the FIRST LYME CONFERENCE in the UK, in 2004. No lessons learned I suppose!

Digeorge says...
1:38pm Sat 14 Aug 10

You know RossD that is what my former GP's said - we don't have lyme here. We do don't we?

I wonder how many GP's actually attended the Lyme Conference in York? Probably not many.. as we don't have Lyme here!!!

You probably had the same GPs as I did, the best thing I ever did was change GPs and what a difference in care and tests.

Thanks Jorvik Medical Practice/South Bank for all the care and attention which should have been done years ago and to my consultants.

Lord_Nose says...
10:31pm Sun 22 Aug 10

As someone who has had Lyme for the last 18 months and been to Hell and back in that time let me offer some basic advice:
1. Don't let any doctor convince you that you haven't got Lyme if you haven't got a bullseye rash. Sometimes there is a rash but in many cases there isn't.
2. Don't let any doctor say the same if you never saw a tick on you. Believe me the young ticks are so small you can hardly see them. Believe me I manage to get (another) on me the other day and only noticed after it had bloated up with all the blood.
3. Don't believe any doctor who after a blood test says it was negative. Many tests are simply inadequate leaving real sufferers without any treatment after that decision.
4. Trust your instinct. Use the internet. Look up the symptoms. If you are getting a great many of the symptoms you are not imagining things - you are suffering from a medical condition and that condition is probably Lyme.
5. If you suspect you have Lyme NEVER let a doctor inject you with a cortisone. This can severely damage your immune system and bring you Chronic Lyme Disease. I should know. It happened to me.
6. Don't believe doctors who say you can be cured after just two or three weeks on one antibiotic. This may be so if you get immediate treatment. The longer you are misdiagnosed the more difficult it will be to treat often resulting in long term treatment. Many doctors are (wrongly) horrified by this concept. It is the only way to deal with it once the infection has got a hold.
7. Find an ILADS doctor. These are the only ones you can really trust if there's been any delay since being infected.
8. Don't be frightened to challenge medics on this issue. Many do not know what they are talking about.

Kevin Slater says...
9:23am Fri 3 Sep 10

Many thanks to all the above readers for their supportive comments.
I would be very greatful if Digeorge from York could contact me, I would like to know which consultants were finally able to help you. As you correctly point out it is imperative that the correct treatment is provided for a long enough duration to eradicate the infection completely. I can be contacted via Mike Laycock at the York Press, many thnks in advance.


Kevin Slater Kevin Slater

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