A BRAVE child battling a rare condition will travel to a renowned London hospital for treatment.

Lilia Warman, a Community Pride Child of the Year, will meet doctors from Great Ormond Street Hospital in December who will assess her rare form of epilepsy.

The seven-year-old, from Acaster Malbis has electrical status epilepticus during slow wave sleep (ESESS), which means her brain doesn’t switch off as it should during sleep.

The youngster had brain surgery when she was just five-weeks-old and has not had a seizure since August 2015, however, her current condition still requires varied medication.

Louise Warman, Lilia’s mum, says her daughter needs to be assessed and is hopeful some form of treatment will help before it is too late.

“She definitely needs to be going there,” she said.

“A consultant said they want to see her and take her case on, and we are waiting for York Hospital to get the information to them.

“We have gone through the medication for her treatment and they will assess her for surgery.

“She has tried quite a lot of treatments and nothing is working.

“She has had ESESS for 18 months and I’m told they have to stop it within two years before it causes any long term damage.”

Lilia’s condition means it takes her hours to fall asleep and she is not getting enough sleep, resulting in her being exhausted throughout the day.

Mrs Warman said: “You or I don’t have any electrical activity through the night, but she constantly does.

“It’s really tricky to control and and she could have it until she is a teenager or for the rest of her life.

“It usually goes at puberty, but that is if you’re lucky.”

Lilia was one of 16 winners on the night as the Community Pride Awards 2016 came to a close in a fantastic ceremony earlier this month at York Racecourse.

Heroes of all ages were recognised for their outstanding contribution to York.

The Community Pride awards are run by The Press and City of York Council.

All nominees must live in, or

contribute to the life in the

city.