A YORK mum whose daughter had brain surgery when she was just five weeks old is taking part in a charity race in her honour.
Lilia Warman, seven, from Acaster Malbis, has a rare form of epilepsy, electrical status epilepticus during slow wave sleep (ESESS), which means her brain doesn’t switch off as it should during sleep.
The condition has caused several knock-on problems with her health and school life as Lilia's brain doesn’t get the chance to recharge itself ready to learn the next day.
In support of her daughter and other families affected by epilepsy, her mum Louise is taking part in Epilepsy Action Bradford 10k on March 13.
She wants to raise awareness about the condition which affects 600,000 people in the UK every year – 50,000 of them from Yorkshire and the Humber.
Louise said: “I’ll be running with 11 close friends to raise vital funds to help providing anyone living with epilepsy with the help they need when they need it most. It’s such a difficult condition to manage if it isn’t controlled properly and people with epilepsy need support.”
More than 1,500 people are expected to take part in the Epilepsy Action Bradford 10K – now in its ninth year. Starting and finishing in Centenary Square, the 10k route is fast and flat, suitable both for first-time runners wanting a fun challenge as well as elites looking to achieve a personal best.
Katie Reah, fundraising events and community manager at Epilepsy Action, said: “We are overwhelmed by the support people have given to this event and it continues to go from strength to strength. We hope this year will be no exception.
“Everyone is welcome to sign up, from new runners to those looking to beat their personal best. An added sense of achievement comes from knowing that every penny raised from the event goes to Epilepsy Action.”
Epilepsy affects around one in every 100 people in the UK alone and 87 people are diagnosed with the condition every day.
For more information about the Epilepsy Action Bradford 10k or to sign up, visit epilepsy.org.uk/bradford10k or call the fundraising team on 0113 210 8881. The closing date for entries is Thursday.