Awareness week set to hold a festival to die for

Awareness week set to hold a festival to die for

Awareness week set to hold a festival to die for

First published in News
Last updated

DEATH will be on the agenda in York next week as the city hosts the Before I Die Festival.

The festival - which is being held to coincide with Dying Matters Awareness Week - is the first of its kind in York and has been set up to address a social need to talk about end-of-life issues.

Among the events will be "death cafes" to discuss attitudes and questions about death, a discussion by experts about whether to legalise assisted dying and an event of "music and poetry to die for".

Professor Celia Kitzinger, from the department of sociology at the University of York, is curator of the festival.

Co-director of the York-Cardiff Chronic Disorders of Consciousness Research Centre, she has carried out a study exploring the experiences of families with loved ones in a long-term coma as her sister Polly is severely brain injured following a car accident.

She said: “Death is often a taboo subject which many people are reluctant to discuss, but through my research and as a result of experiences within my own family, I have become convinced that we urgently need to talk about end-of- life issues as individuals and as a society.

“The festival combines thought-provoking perspectives on death, but we also aim to provide opportunities for people to think about their wishes for their own end-of-life and advise on how to make sure these choices are documented and made clear to relatives and medical staff.”

It is being supported by former Joseph Rowntree School teacher Margaret John, of Southbank, who has incurable ovarian cancer and manages her illness with chemotherapy.

She believes doctors should be free to advise patients on the most humane way to end their life and wants to know that she could choose if the time is right. Last year Ms John testified in the Supreme Court as part of an attempt to clarify the issue of whether doctors can advise someone with a serious illness who wants to die.
 

Highlights of the festival

Tuesday

• Upstage Centre Youth Theatre, Monkgate, 7.30pm to 10.30pm

Chris Larner's 'An instinct for kindness'

In November 2010, Chris Larner accompanied his chronically ill ex-wife to Switzerland’s Dignitas clinic. He will tell his story.

Booking needed by calling 01904 323041 or emailing info@beforeidiefestival.co.uk. Admission is £10, concessions £8

• Death Cafe, Friargate Quaker Meeting House, 11am to 1pm

This death café is an opportunity to discuss thoughts, attitudes and questions about death over tea and cake.

• A Good Death? Research Centre for the Social Sciences, University of York, 2pm to 4pm, free

What shapes our ideas about what a ‘good death’ looks like? What meaning does the concept of a good death have in a morally and religiously plural society?

The panel will explore how the concept of a good death has developed through history.

Thursday

• Music and Poetry to Die For, 7.30pm to 9.30pm, National Centre for Early Music, St Margaret’s Church, Walmgate

The programme will feature solo songs whose poetry explores the impact of bereavement, permission to die, and release and hope,

Tickets cost £8, booking needed, phone 01904 658338

Saturday

Advance decision clinics, Friargate Quaker Meeting House 10am to 1pm

• Do you want to write your own advance decision? Not sure how to start or how to do it?

Free information and help with writing advance decisions available on a one-to-one basis with members of the panel associated with the charity, Compassion in Dying.

Book a 30 minute slot with an advisor by emailing info@beforeidiefestival.co.uk

The full programme and further details are available on the festival website www.beforeidiefestival.co.uk/

Comments (4)

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10:05am Sat 10 May 14

MilkandTwo says...

Euthanasia is a very dangerous thing for our society. it starts with lovely sounding personal decision stuff like this but the situation in Holland shows where it would end up.

In only 23 years, Dutch doctors have gone from being permitted to kill the terminally ill who ask for it, to killing the chronically ill who ask for it, to killing newborn babies in their cribs because they have birth defects, even though by definition they cannot ask for it. Dutch doctors also engage in involuntary euthanasia without significant legal consequence, even though such activity is officially prohibited

The British Medical Association and Parliament are against euthanasia for good reasons.
Euthanasia is a very dangerous thing for our society. it starts with lovely sounding personal decision stuff like this but the situation in Holland shows where it would end up. In only 23 years, Dutch doctors have gone from being permitted to kill the terminally ill who ask for it, to killing the chronically ill who ask for it, to killing newborn babies in their cribs because they have birth defects, even though by definition they cannot ask for it. Dutch doctors also engage in involuntary euthanasia without significant legal consequence, even though such activity is officially prohibited The British Medical Association and Parliament are against euthanasia for good reasons. MilkandTwo
  • Score: -2

10:24am Sat 10 May 14

Bad magic says...

MilkandTwo wrote:
Euthanasia is a very dangerous thing for our society. it starts with lovely sounding personal decision stuff like this but the situation in Holland shows where it would end up.

In only 23 years, Dutch doctors have gone from being permitted to kill the terminally ill who ask for it, to killing the chronically ill who ask for it, to killing newborn babies in their cribs because they have birth defects, even though by definition they cannot ask for it. Dutch doctors also engage in involuntary euthanasia without significant legal consequence, even though such activity is officially prohibited

The British Medical Association and Parliament are against euthanasia for good reasons.
Amazingly, almost everything in this statement is untrue.
[quote][p][bold]MilkandTwo[/bold] wrote: Euthanasia is a very dangerous thing for our society. it starts with lovely sounding personal decision stuff like this but the situation in Holland shows where it would end up. In only 23 years, Dutch doctors have gone from being permitted to kill the terminally ill who ask for it, to killing the chronically ill who ask for it, to killing newborn babies in their cribs because they have birth defects, even though by definition they cannot ask for it. Dutch doctors also engage in involuntary euthanasia without significant legal consequence, even though such activity is officially prohibited The British Medical Association and Parliament are against euthanasia for good reasons.[/p][/quote]Amazingly, almost everything in this statement is untrue. Bad magic
  • Score: 1

10:37pm Sat 10 May 14

MilkandTwo says...

Bad magic wrote:
MilkandTwo wrote:
Euthanasia is a very dangerous thing for our society. it starts with lovely sounding personal decision stuff like this but the situation in Holland shows where it would end up.

In only 23 years, Dutch doctors have gone from being permitted to kill the terminally ill who ask for it, to killing the chronically ill who ask for it, to killing newborn babies in their cribs because they have birth defects, even though by definition they cannot ask for it. Dutch doctors also engage in involuntary euthanasia without significant legal consequence, even though such activity is officially prohibited

The British Medical Association and Parliament are against euthanasia for good reasons.
Amazingly, almost everything in this statement is untrue.
Non voluntary euthanasia in the Netherlands - 1000 deaths without consent:

http://en.wikipedia.
org/wiki/Non-volunta
ry_euthanasia#Euthan
asia_in_the_Netherla
nds

BMA policy on euthanasia:

http://bma.org.uk/pr
actical-support-at-w
ork/ethics/bma-polic
y-assisted-dying

The House of Lord rejected euthanasia bills in 2006 and 2009

Scottish Parliament rejects euthanasia 85 to 16, in 2010:

http://www.bbc.co.uk
/news/uk-scotland-11
876821
[quote][p][bold]Bad magic[/bold] wrote: [quote][p][bold]MilkandTwo[/bold] wrote: Euthanasia is a very dangerous thing for our society. it starts with lovely sounding personal decision stuff like this but the situation in Holland shows where it would end up. In only 23 years, Dutch doctors have gone from being permitted to kill the terminally ill who ask for it, to killing the chronically ill who ask for it, to killing newborn babies in their cribs because they have birth defects, even though by definition they cannot ask for it. Dutch doctors also engage in involuntary euthanasia without significant legal consequence, even though such activity is officially prohibited The British Medical Association and Parliament are against euthanasia for good reasons.[/p][/quote]Amazingly, almost everything in this statement is untrue.[/p][/quote]Non voluntary euthanasia in the Netherlands - 1000 deaths without consent: http://en.wikipedia. org/wiki/Non-volunta ry_euthanasia#Euthan asia_in_the_Netherla nds BMA policy on euthanasia: http://bma.org.uk/pr actical-support-at-w ork/ethics/bma-polic y-assisted-dying The House of Lord rejected euthanasia bills in 2006 and 2009 Scottish Parliament rejects euthanasia 85 to 16, in 2010: http://www.bbc.co.uk /news/uk-scotland-11 876821 MilkandTwo
  • Score: 1

7:50am Sun 11 May 14

Digeorge says...

I will talk here about genetic diseases particularly the word 'carrier' of which there is no such thing, you either have it or don't.

At no time during my patient pathway which is now considerably better has anybody discussed the end of life. This is bizarre as it is enviable that I will die from the side effects of this diagnosis or tell people who have this condition this is what they will die of or really that it is a diagnosis that requires to be managed.

But more importantly they are telling people well it is 50:50 giving birth to a child who has serious life-threatning illnesses and diseases throughout its life and will probably die early. Quite happy though for us to get pregnant and really must be 'bonkers' to seriously have another one.

Nor did they discuss it with us with my son with complex heart problems when it was enviable, quite happy to accuse though, but a discussion in all of this should have been done. Nor was there any sympathy or empathy when he died aged 8.

What I didn't when I had a genetic test done was consent to 'no' treatment on the NHS.

The NHS needs to change how they think about respect for those who are dying and how they want to die as death is inevitable part of life (guaranteed).
I will talk here about genetic diseases particularly the word 'carrier' of which there is no such thing, you either have it or don't. At no time during my patient pathway which is now considerably better has anybody discussed the end of life. This is bizarre as it is enviable that I will die from the side effects of this diagnosis or tell people who have this condition this is what they will die of or really that it is a diagnosis that requires to be managed. But more importantly they are telling people well it is 50:50 giving birth to a child who has serious life-threatning illnesses and diseases throughout its life and will probably die early. Quite happy though for us to get pregnant and really must be 'bonkers' to seriously have another one. Nor did they discuss it with us with my son with complex heart problems when it was enviable, quite happy to accuse though, but a discussion in all of this should have been done. Nor was there any sympathy or empathy when he died aged 8. What I didn't when I had a genetic test done was consent to 'no' treatment on the NHS. The NHS needs to change how they think about respect for those who are dying and how they want to die as death is inevitable part of life (guaranteed). Digeorge
  • Score: 0

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