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MP takes up Ben Foy’s battle for medication
THE case of a York schoolboy refused medication for disorders thought to have been caused by the swine flu jab has been referred to the Government.
Eight-year-old Ben Foy, from Strensall, suddenly falls asleep up to 20 times a day and often collapses suddenly as a result of narcolepsy and cataplexy understood to have been brought on by the jab.
York Outer MP Julian Sturdy has taken on Ben’s case and has written to Health Secretary Jeremy Hunt and the head of the NHS, Sir David Nicholson to request a meeting, as although Ben was originally told by his doctor he would receive the drugs modifinal and sodium oxybate, the former was stopped on medical grounds and the second has been refused by a funding panel.
Mr Sturdy said: “I was extremely disappointed to hear that Ben’s individual funding request has been rejected and what’s more, there appears to be some conflicting information as to the exact reasons why Ben’s application was refused.
“I am determined to get to the bottom of this and in my quest for answers, I’ve written to Sir David Nicholson, the chief executive of NHS England and Jeremy Hunt, the Secretary of State for Health, to request a meeting.
“Ben’s case is important in highlighting some of the difficulties [York and North Yorkshire patients] face, but, perhaps more importantly, it raises the newer dilemma of NHS bureaucracy getting in the way of patients having access to treatments.”
Mr Sturdy’s letter also raises concerns about the flu jab Pandemrix and its connection with narcolepsy which has been acknowleged by the Health Protection Agency.
Ben’s grandfather, Brian Hamilton, said he welcomed Mr Sturdy’s support and called for a greater clarity on the prescription and funding of drugs.
The Department of Work and Pensions will be considering applications for compensation in relation to narcolepsy in connection with the Pandemrix vaccine and there is also a bid for group action for compensatory damage being launched, solicitors Hodge, Jones and Allen have said.
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