ADULTS and their families living with ADHD are being let down by inadequate support in York, a new report has claimed.
Moving personal testimonies of people with, or caring for people with, attention deficit hyperactivity disorder (ADHD) have revealed how they feel abandoned by the health system, with some even becoming suicidal because of a lack of help.
ADHD, estimated to affect 5,250 adults in the city, is described as a group of behavioural symptoms that include inattentiveness, hyperactivity and impulsiveness.
The report by Healthwatch York indicates a reluctance among GPs to make referrals, with limited access to ongoing support even after referral.
Parents told Healthwatch their adult children had become suicidal, with one man’s chaotic behaviour escalating to the point they had been imprisoned.
One said: “I am alone with the responsibility of caring for my son.
“I am constantly tired. Inside I feel trapped and desperate.
“It is not easy to relax as there is a feeling of guilt that accompanies this. It stems from a conviction that somehow I have let my son down knowing that more could have been done. I feel I was part of the system that failed him.”
One man told how he approached his GP in York for help but was told “there is no money in mental health”. He had been put back on the medication he wanted to change from “without any therapeutic support” or hope of it.
The Healthwatch report states: “There needs to be a consistent pathway and options for treatment and support. The financial, emotional and societal costs of failing to do so are evident from the experiences people have shared with us.”
- The report will be discussed at City of York Council’s health and wellbeing board on Wednesday.